Yes, for 24 hours straight Jason will be playing games for Boston Childrens Hospital!! Here is the information page.
https://www.hospitalshelpingkids.org/ExtraLife/m.aspx?i=20859738F9BE678C5
He is very excited about this. Not only will he benefit the hospital that will be a part of our lives for many many years, he will also get to play games for 24 hours straight (and I cant complain about it!) Win win I tell you!!!!
My role will be to keep the kids occupied and of course bring him all the caffeinated beverages he needs. Cant he do it!!!?? He has had a lot of practice for sure!
Thank you all for supporting him. It really means a lot to us. We not only want to raise awareness for Congenital Heart Disease but we also want to support one of the best hospitals in the country. The children who go into Boston Childrens Hospital need our help. Lets be there for them and show as much support as we can!!!!!
Hope everyone is doing well!!!
Laura
Friday, October 8, 2010
Monday, September 20, 2010
Cleared for SIX MONTHS!
Nathan had his cardiologist appointment today. Dr. Breitbart said he looks great and he doesnt need to come back for 6 months! :-) So happy!!!!
Hope Everyone is doing well!!
Laura
Hope Everyone is doing well!!
Laura
Thursday, September 9, 2010
Magic Cream Worked!
Hello Everyone
Well, Im happy to say that Nathan's incision is healing very nicely!!! Sorry I havent updated sooner. I guess things have gone so well I havent thought about blogging:-) He is still not sleeping 100% and he isnt eating. All of this is to be expected. Hopefully he will start improving in those areas soon. But no rush! We are just thrilled his incision is looking so much better. We are still keeping it covered...just until it heals all the way....Im not taking any chances.
It is cooling down here in New England. Jason and I are loving it here. We have taken the boys to several places. They are enjoying it and Im going to get them involved in a playgroup starting next week. We miss everyone though:-( But we are having lots of visitors so that helps.
Hope everyone is doing well!!!
Well, Im happy to say that Nathan's incision is healing very nicely!!! Sorry I havent updated sooner. I guess things have gone so well I havent thought about blogging:-) He is still not sleeping 100% and he isnt eating. All of this is to be expected. Hopefully he will start improving in those areas soon. But no rush! We are just thrilled his incision is looking so much better. We are still keeping it covered...just until it heals all the way....Im not taking any chances.
It is cooling down here in New England. Jason and I are loving it here. We have taken the boys to several places. They are enjoying it and Im going to get them involved in a playgroup starting next week. We miss everyone though:-( But we are having lots of visitors so that helps.
Hope everyone is doing well!!!
Friday, August 27, 2010
Another Doctors visit...
Last night Jason and I noticed that once again Nathans incision was getting red and more swollen. It was late and Nathan didnt have a fever so we decided not to take him in to the hospital. Instead we waited until this morning and went to see his regular pediatrician. Honestly I dont know what is going on with it. It isnt a full on infection. But it isnt healing properly. It is extremely red and puffy and oozing. It is only about an inch. The rest of the incision is completely healed.
So the doctor said that he was "alittle" concerned. But he is willing to try a topical cream. Im happy about this. I am praying that the cream does the trick . I will admit that I really dont want to go back to the hospital. But of course we will if Nathan needs it. Jason and I are really tired. We would like this rollercoaster to stop. We were talking this afternoon and both of us just cant believe how some parents cope with an even sicker child. I cant even think straight these days and had to be convinced that it was 2010 by the lady at the doctors office. My brain just isnt working!!
I am sure Jason and I have learned a lot from this experience. I like to go back and remember things that I have been through and tell myself what I have learned. With this experience I know there is something but I think I wont know exactly until things start to calm down:-) God really doesnt give you more than you can handle. Just when Im about to break I feel him give me that extra push I need.
Im sure this incision thing will eventually work itself out. I just wish we knew what was causing it. Ill let everyone know how it goes with the cream!!!
Please keep praying that it works!
Laura
So the doctor said that he was "alittle" concerned. But he is willing to try a topical cream. Im happy about this. I am praying that the cream does the trick . I will admit that I really dont want to go back to the hospital. But of course we will if Nathan needs it. Jason and I are really tired. We would like this rollercoaster to stop. We were talking this afternoon and both of us just cant believe how some parents cope with an even sicker child. I cant even think straight these days and had to be convinced that it was 2010 by the lady at the doctors office. My brain just isnt working!!
I am sure Jason and I have learned a lot from this experience. I like to go back and remember things that I have been through and tell myself what I have learned. With this experience I know there is something but I think I wont know exactly until things start to calm down:-) God really doesnt give you more than you can handle. Just when Im about to break I feel him give me that extra push I need.
Im sure this incision thing will eventually work itself out. I just wish we knew what was causing it. Ill let everyone know how it goes with the cream!!!
Please keep praying that it works!
Laura
Wednesday, August 25, 2010
Update on Nathan
Hello Everyone!
Just wanted to give everyone an update on how Nathan is....
He is doing really well. Since being discharged from the hospital for his infection he has been healing nicely! He is playing and for the most part he has been in a good mood. He hasnt been eating very much and sleeping has been an issue. I started giving him motrin at night and that seems to help. Sometimes he will grab his chest (where the incision is) and say ouch. So Im thinking he is still sore.
We have been staying close to home these days. I still feel that he needs to recover. It has been almost a month since the surgery, but looking at Nathan you could never tell. So I think it is up to Jason and I to pace him. He thinks he is 100%! :-) The best thing is he is PINK! He has pink lips and pink hands and feet. Im thinking his oxygen level is around 93%:-) So nice to see him that way.
We took a small day trip to Maine last weekend. The boys had a great time! We are looking forward to the Fall. Thinking of taking a trip to Connecticut to see the leaves change! I bet it will be beautiful.
I will keep everyone updated. But Jason and I are looking forward to a very very boring year.:-)
Love Everyone!!
Laura
Just wanted to give everyone an update on how Nathan is....
He is doing really well. Since being discharged from the hospital for his infection he has been healing nicely! He is playing and for the most part he has been in a good mood. He hasnt been eating very much and sleeping has been an issue. I started giving him motrin at night and that seems to help. Sometimes he will grab his chest (where the incision is) and say ouch. So Im thinking he is still sore.
We have been staying close to home these days. I still feel that he needs to recover. It has been almost a month since the surgery, but looking at Nathan you could never tell. So I think it is up to Jason and I to pace him. He thinks he is 100%! :-) The best thing is he is PINK! He has pink lips and pink hands and feet. Im thinking his oxygen level is around 93%:-) So nice to see him that way.
We took a small day trip to Maine last weekend. The boys had a great time! We are looking forward to the Fall. Thinking of taking a trip to Connecticut to see the leaves change! I bet it will be beautiful.
I will keep everyone updated. But Jason and I are looking forward to a very very boring year.:-)
Love Everyone!!
Laura
Tuesday, August 17, 2010
We are HOME!
They discharged us yesterday evening. It is SO GOOD to be home!!!!! Hopefully we wont have to go back for a very long time!
Nathans incision is healing. They gave him some oral antibiotics to go home with. So hopefully that will clear it up completely. We will be staying close to home all week just relaxing! That is if Joshua and Nathan dont go stir crazy. :-)
Today is Jason's birthday!! Im sure he is happy to have everyone home. We dont have any plans really. I think we may just celebrate this weekend.
That is all for now!! OH WAIT NO I HAVE MORE.....
The best news ever is Nathan is in NORMAL SINUS RHYTHM!!! No more heart block and completely in sinus rhythm:-) So happy about that. We found that out Sunday but didnt want to say anything until his own cardiologist told me. HOORAY!
Hope everyone is doing well! Thank you again for all the good thoughts and prayers. They are helping more than I can tell you. Knowing that Nathan has all these people behind him is so wonderful. Im sure he will enjoy reading this blog when he gets older and he will be so proud of himself for all that he has gone through.
Laura
Nathans incision is healing. They gave him some oral antibiotics to go home with. So hopefully that will clear it up completely. We will be staying close to home all week just relaxing! That is if Joshua and Nathan dont go stir crazy. :-)
Today is Jason's birthday!! Im sure he is happy to have everyone home. We dont have any plans really. I think we may just celebrate this weekend.
That is all for now!! OH WAIT NO I HAVE MORE.....
The best news ever is Nathan is in NORMAL SINUS RHYTHM!!! No more heart block and completely in sinus rhythm:-) So happy about that. We found that out Sunday but didnt want to say anything until his own cardiologist told me. HOORAY!
Hope everyone is doing well! Thank you again for all the good thoughts and prayers. They are helping more than I can tell you. Knowing that Nathan has all these people behind him is so wonderful. Im sure he will enjoy reading this blog when he gets older and he will be so proud of himself for all that he has gone through.
Laura
Sunday, August 15, 2010
Nathan is back in the Hospital
Well Nathan was admitted to the hospital Friday night. He has an infection on his incision:-( Poor thing!!! It is pretty nasty. He is on IV antibiotics. We will be here for awhile. The surgeons want to make sure they get all the infection because they do not want it to reach his heart. Also - we are making sure the IV antibiotics work because if they dont (or dont work completly) they will need to reopen the site and clean it out. :( Something we DO NOT want.
Nathan is doing good. He is playing and LOVES riding around the hospital in the wagon. So we do that A LOT!!
Please be thinking of him. I know this will be behind us soon. He has been through so much and this just sucks that he has to be readmitted.
Hope everyone is doing well!!
Laura
Nathan is doing good. He is playing and LOVES riding around the hospital in the wagon. So we do that A LOT!!
Please be thinking of him. I know this will be behind us soon. He has been through so much and this just sucks that he has to be readmitted.
Hope everyone is doing well!!
Laura
Subscribe to:
Posts (Atom)