Nathan is back in the Hospital

Well Nathan was admitted to the hospital Friday night. He has an infection on his incision:-( Poor thing!!! It is pretty nasty. He is on IV antibiotics. We will be here for awhile. The surgeons want to make sure they get all the infection because they do not want it to reach his heart. Also - we are making sure the IV antibiotics work because if they dont (or dont work completly) they will need to reopen the site and clean it out. :( Something we DO NOT want.

Nathan is doing good. He is playing and LOVES riding around the hospital in the wagon. So we do that A LOT!!

Please be thinking of him. I know this will be behind us soon. He has been through so much and this just sucks that he has to be readmitted.

Hope everyone is doing well!!

Laura

Nathan's Pediatrician Visit

Just got back from taking Nathan to the doctor. He said Nathan looks great! He is eating and playing like he should! However right before we left the house for the appointment Nathan starts coughing and vomits EVERYWHERE! BLAH! It was nasty. But it is just from all the congestion. Hopefully that will clear up soon.

I really like his new doctor. He was very nice. I have known for awhile that Nathan is behind on his speech and this doctor wrote us a referrel to a speech therapist. I will let everyone know how that goes. Hopefully Nathan will be talking up a storm in no time!!

Nathan has a cardiologist appt on Monday!!!

Hope everyone is doing well!

Laura

Hard Nights

Nathan isnt sleeping well since being home. He tosses and turns. Wakes up at least 7 times a night:-( He cant breathe out of his nose so I know that is causing some of it. But it also seems he still might be in some pain. So we continue to give him motrin and tylenol. He is also still coughing a lot. Tomorrow we have an appointment with a pediatrician so Im curious to hear what they say about it.

Today Jason went back to work. I am going to miss all his help!!! But it will be nice to get back to normal.

Ill let everyone know how the appointment goes!

Laura

Wow - Its starting to feel normal

Today we took the boys to see a movie. Only a week ago Nathan was in ICU. Cant believe it! We still have to pace him (he thinks he is 100%) But today we decided to go somewhere low key. He did great!

His nurse came today and she said he is getting better and better everyday. He is still very congested so we are trying to do chest PT to help break that up.

I can not believe all this went by so fast. We have been getting ready for this surgery for months!! I know he has a lot of healing to do but Im so glad he has done so well. With the big move here and getting ready for this it has been very stressful. Now the move is over and the surgery.....seriously what am I going to focus on now!?

First Day Home

Nathan is enjoying being home. He is in alittle pain but hopefully we can get that under control. He has been very moody:-(

Last night he slept SO well in his bed:-) And so did I! It was so nice.

In the hospital after he woke up in the morning and after his nap we always took him on a stroller ride around the hospital. Well we have a stroller at home by the front door and sure enough he wants to be pushed around the house when he wakes up:-)

The in home nurse came this afternoon. She was a big help. Nathan has been throwing up his medicines so she gave us a few ideas. Checked his oxygen level and his scar. All the regular stuff. He looks good. He will have another in home visit on Friday.

Other than that not too much to report. My mom left this morning:-( She was a HUGE help!!!!! I miss her. Jason's parents leave tomorrow:-( It was so nice having all the help. His parents were amazing! Couldnt have gotten through all this without them.

WHAT??? ARE THEY REALLY GOING TO LET US GO????

Dr. Breitbart just came in and said goodbye!!! :-) Nathan is well enough to go home!!! WHOO HOOO we made it!!!!!! Cant believe this is behind us. Im am so so so so so excited!!!!

We should leave in about 3 hours. We actually had a roommate last night so it was kinda hard. Poor little boy did NOT want to be here. Nathan kept saying "Baby BIG boo boo!!" It was sweet. But we were up almost all night.

Nathan still has a few issues but nothing we cant monitor from home. We will have a nurse come to the house to check on him too.

Oh also my wonderful brother got a maid to come to the house and she is cleaning right now:-) Thank you Mike!!!!!

Here are some pics of Nathan. The best one is of him and his WONDERFUL doctor!! We are so blessed to have such a great doctor!! He is AMAZING:-)

Pics of Sunday

A few pictures of Nathan! He was playing all day!! Also he decided to take a nap during his ekg:-)